Today is rare disease day, and for some reason it’s blowing up all over my social networks. It honestly is pretty cool to me that so many people want to spread awareness to this day and to the people that suffer with rare diseases. This is just going to be short, but I’m so thankful for the hands that have helped me through all these years.
Thankful for my parents that have been by my side taking care of me through all of this. Getting me things whenever I need it. My dad being very straight with drs and nurses (mostly in the er) and he’s taught me to be very straight with them as well. Ha I don’t know what I would do if I was still as shy as I once was.
And my amazing nurses down in Medford that poured so much love into me. I think about them so often. What would I have done all those years without them? Sad I don’t have nurses like that here in Eugene. They gave me something to look forward to each week when I would walk in to get a treatment. I love all of them so much and miss them dearly. Mary, Marty, Martina, Peggy, Patty, Leslie, Leah and Jody.
I make this post just to bring awareness to the rare, hard diseases without any cures, and to be here to talk with the other people that are struggling with sicknesses. I’ve met so many people on here and am so blessed to have people to be able to relate to me and for me to talk to, and they actually get it!
I saw this video today, and honestly I loved it. It was inspiring.