My fingers shake and tears stream down my eyes as I begin to type. It’ll be 3 months and 14 days since my brain surgery. I check it everyday. I don’t even know if I have the words to express what happened or what is still going on.
It was hard on my before surgery. Knowing I was going to go through and have my left skull open, instead of my last laser one (crazy painful/hard). I knew it would be hard. Drs knew it would be the most painful one, but none of us thought of what was about to happen.
I only remember “flashes” from the last 3 months. A main part of that is yes, my short term memory. My hippocampus (which controls short term memory). Waking up in the hospital and in pain you will not understand (almost the majority reading, I feel no need being dramatic). They had shaved my hair, cut open my skull, cut my jaw cord, so they could open my mouth on that side much wider. They took out a good chunk of brain.
I remember trying to say words of pain meds. I couldn’t talk right. When I’d open my eyes there was people walking all on the right, animals jumping, lights squealing by in every different color. I’d look at people and have no clue what that person looked like. I could understand the voices I know, but I couldn’t see them. When I looked at people, half of their face was gone. My brain/eyes lost the ability to see the right side on everything. It filled in the missing vision with all the actions floating in that “black out” side for me.
People would talk, and for months I’d say, “what? I don’t get it”. The ability for my brain to hear multiple words in a row was too hard on me to understand. I need few, and very slow. I “stuttered” often, but it was more so me trying to say a word that should come out of my mouth, but it wouldn’t. My mind couldn’t find them. I had to rewire (still working on it) to find words to be able to say.
I had lost all form of emotions. My brain, my body, my heart couldn’t feel them. I felt like a robot who didn’t know how to take care of what I was doing. I felt nothing. What was touched in my brain is of course the side of emotions. It was incredibly hard to understand how to deal with things being said, or even deal with the fact that I wasn’t all better each week. It was a couple months before I felt an actual “love” feeling. Unless you’ve truly been through this there is no way to describe the ability not to even know what it is. It was impacting me so severely. I didn’t know how to do life. Over and over again, everyday, doing the same things. Not talking right, unable to see, can’t read, have lost the majority of names I’ve known even my whole life (I’m learning names of people back slowly), couldn’t remember what happened after each day (I’ve learned to write down days and events), thought my brain wasn’t done right, I couldn’t talk long, it would completely tire my whole body to the ground.
As I type these I still cry. It’s all extremely hard to deal with, but I’m now working on it all slowly. It was very hard the many people who would send words to me, thinking they understand what will help, bible verses, youtube videos, advice on life, relating things they’ve been through. It was beyond hard on me to take in. I full on know people just do not get this at all. Very few people. There is only one man I talked to about all of these, and actually got it because he’s done the SAME thing! I will write about what people shouldn’t do for those truly suffering. I know they wanted to help. It wrecked me though. I’ve learned from years of intense suffering what not to do to those hurting.
I take a big deep breath as I write this. I need to take one day at a time. My ability to handle things i not like normal. They said it was an incredibly traumatic event that happens. It’s good for me to take everything slow, not push myself, not let people come at me, not think I’m going to be all healed in a week. My amazing neurologist said after this surgery it will be up to a year recovery. So I need to just understand that and go slow in life. I’m trying, it’s just all hard on me. Hard to handle.
There is so much for for me to say of what has happened and what is still going on. I need healing in even the strong surgery that just happened. Not just the pain. When people see me don’t think I’m all “normal Hannah” because I’ve now started wearing makeup, putting on normal clothes and seeing me laugh. Each day is different.
My heart goes to those with long term sicknesses. I cry often over it. It’s not like normal things everyone wants to compare their lives with.
I will tell you this. I couldn’t feel anything in me. I couldn’t feel Jesus with me, I couldn’t feel anything. I couldn’t pray. I couldn’t even think words in my mind, and could barely speak out loud. That was beyond hard in not able to go after my Savior. I know more than anything Jesus was with me. I know more than anything He truly cared and was saddened by what I just went through. Once I was able to start “feeling” Christ, praying word at a time to Him tears of “feeling” God. I don’t know how to explain it or truly have you understand it unless you’ve ever had a brain surgery this intense. I told my speech therapist at one time that Jesus has been with me more than anyone my whole life, especially coming from the 12 year old girl who got sick. If I had not none Jesus Christ, and felt is actual presence with me during all these sorrowful years of sickness and intense hospital seasons. I don’t know where I’d be.
Jesus has me here now. There is/must be a reason. Faith as small as a mustard seed will move mountains. I’m hoping for strong faith in Jesus.
My whole left side, especially my head was swollen for over a month. I have no memory of this picture or it being light in that room at all. Thank goodness for the care in Phoenix♥
Letting you know, I can’t use all words right still. I sound “weird” sometimes. My brain is still working to sound right and understand what comes out of my mouth ❤️